Help us build congressional support for recognizing May 2026 as PSP & CBD Awareness Month

For three years in a row, CurePSP has partnered with key congressional offices around a federal level PSP & CBD Awareness Resolution for the month of May, but we need your help to foster more support. The below message will be sent to the elected representatives for your district. While not required, please feel free to add a brief (recommended: no more than a few sentences) personal message to accompany it. Thank you for advocating with CurePSP!

As your constituent, I am writing to urge you to cosponsor the House Resolution recognizing May 2026 as Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) Awareness Month. 

PSP and CBD are neurodegenerative conditions that cause significant difficulty with speech, swallowing, balance, coordination and much more. While some effects of PSP and CBD are similar to those of Parkinson’s disease, they are distinct conditions that impact approximately 35,000 Americans. Although PSP and CBD are largely unknown to the average person and even most medical providers, they are believed to be as common as amyotrophic lateral sclerosis (ALS or Lou Gehrig’s), although are drastically under- and misdiagnosed. Most people living with PSP and CBD become dependent on care in just 3-4 years and on average, they carry a life expectancy of 7-8 years from symptom onset. There are no known treatments or cure for PSP or CBD at present and the diagnoses can only be definitively confirmed post-mortem. Learn more at curepsp.org

In September 2023, your colleague, former Congresswoman Jennifer Wexton (VA-10), announced that she was diagnosed with PSP and spent the remainder of her time in office taking crucial steps to shine light on this complex brain disease, including the first-ever introduction of a federal month of awareness resolution. Her successor, Rep. Suhas Subramanyam, has continued her championship.   

Raising awareness, especially among our legislators, is essential to advancing better diagnosis, treatment and prevention of these diseases. I hope you will show your support for the PSP and CBD community in our district and across the country through the House Resolution recognizing May 2026 as PSP & CBD Awareness Month.